Salem girl in wheelchair gets custom costume and takes part in annual parade – Boston News, Weather, Sports

Salem, Mass. (WHDH) – A girl from Salem’s Halloween dream is coming true this year.

Eleven-year-old Savannah Smith is attending Salem’s annual Haunted Happenings Parade for the first time and will be dressed in a costume specially adapted for her wheelchair and inspired by her favorite television show, The Voice.

“I was in tears because this was such a moment for me,” said Savannah’s mother, Lacey Smith. “Simply overwhelming. The people who care about our daughter all the time, it’s just incredible.”

Savannah lives with a severe mutation in Ogden Syndrome, a rare neurodevelopmental disorder that affects fewer than 100 people worldwide.

She’s also blind, so the 16-person team that designed the costume from two companies, SOLIDWORKS and Magic Wheelchair, incorporated many auditory elements.

“We worked really hard on it. We started work on it in July and we’re done now,” said Sara Zuckerman, who helped create the costume. “It’s playing music, it’s got all these lights on it, we can make it say, ‘I want you!’ or ‘Happy Halloween’ or ‘Team Savannah’.”

The costume comes complete with lights and speakers and is tailored to her medical needs. Savannah’s father said he was grateful to everyone who helped design his daughter’s costume.

“It’s pretty amazing,” said Mark Smith. “These guys have put in a lot of hours. I was expecting something pretty awesome because I’ve seen their previous costumes, but they really blew this one.”

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Sarah Y. Kim

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