My son was born without eyes and I was told he would die before he was even born – but then a miracle happened

A BABY boy who was born without eyes and could have died HAS GROWN a pair of eyeballs, his mother revealed.

Jeremiah, now four, was in a GP’s waiting room when Serena Pascall, 46, saw a “shiny black marble” behind an open eyelid.

Jeremiah was born without eyes

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Jeremiah was born without eyesCredit: Telling and Selling Stories
The little boy was given a slim chance of survival

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The little boy was given a slim chance of survivalCredit: Telling and Selling Stories
His parents had the option of an abortion

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His parents had the option of an abortionCredit: Telling and Selling Stories

His eyesight is now gradually improving after his parents were told he had a slim chance of survival.

And Serena, from London, said defiantly: “I’m determined to give him as much pleasure as possible.”

She and her husband Darren had the option of aborting Jeremiah when they learned he had the rare genetic disorder trisomy 13.

Doctors thought he would die before or shortly after birth. He was also born with six fingers and six toes and was deaf.

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But they didn’t find out until after he was born that he had no eyeballs, an untreatable condition called bilateral anophthalmia.

Serena wrote in a book: “I started sobbing and ran my finger over Jermiah-Lee’s eyelids. They were soft, mushy…empty.

“After that, I locked myself in a pitch-dark bathroom and tried to imagine what life would be like for our son.

“How will he ever be happy? I thought.”

Mother-of-six, Serena, said her family learned to give him chest compressions because Jeremiah, nicknamed JamJam, often stopped breathing.

But while they were in a GP’s waiting room when he was eight months old, he suddenly opened an eyelid for the first time.

Serena wrote: “I gasped when I saw what appeared to be a shiny black marble behind it.

“‘He has an eye! Can you see an eye?’ I asked the woman next to me.

“‘Yes, that’s an eye,’ she said.

“To my amazement it was confirmed that JamJam now had two eyes and his diagnosis was changed to microphthalmia (small eyes).

“Even though he was very limited, he had some vision.

“‘He actually grew eyes,’ I said. ‘It’s a miracle,’ Darren replied.”

trisomy 13

What is it? A severe, rare genetic disorder that seriously disrupts normal development. In many cases, this results in miscarriage, stillbirth, or the death of the baby shortly after birth.

A very rare birth defect in which a baby is born without one or both (bilateral) eyes. It can occur alone, with other birth defects, or as part of a syndrome.

What are the symptoms? Symptoms may include missing one or both eyes, nose problems, or abnormalities of the face and head, including smaller size or ear deformities.

What is the treatment? There is no specific treatment. Doctors usually focus on minimizing discomfort and making sure the baby is able to feed.

Where can I find more? Visit the NHS here for more information.

They threw JamJam a huge party for his first birthday with music therapy, sensory games and a bouncy castle.

Serena added: “Watching him shake a red maraca with a huge smile on his face made me feel like the luckiest mother in the world.

“Now he’s four and still has breathing difficulties and suffers from severe epilepsy.

“He has visual stimulation therapy at home and at school and responds successfully to light.

“We believe his vision will continue to improve. A few weeks ago he had three seizures and was hospitalized.

“He’s still there, currently intubated to help him breathe, but we’re all hoping he gets better very soon.

“People often ask if I would change something. While I’d love to take JamJam’s disabilities away, this is his journey.

“And I’m determined to give him as much pleasure as he gives us.”

Serena’s book JamJam Can! is available on Amazon.

Serena said she is determined to give her boy the best life possible

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Serena said she is determined to give her boy the best life possibleCredit: Telling and Selling Stories

https://www.the-sun.com/health/5943102/son-born-no-eyes-miracle/ My son was born without eyes and I was told he would die before he was even born – but then a miracle happened

Sarah Y. Kim

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