I was taken to the ER with “Appendicitis” and left with my surprising little girl – now we’ve lost her months later

A MOTHER, who had no idea she was pregnant, was heartbroken after losing her surprise baby girl just months after giving birth.

Hannah Muskett, 21, had no idea she was pregnant with Ava Louise until the very last minute, as she assumed her abdominal pain was appendix-related.

Ava Louise died at just nine months old

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Ava Louise died at just nine months oldPhoto credit: MEN Media
Her parents, Hannah Muskett and Lewis Brittain, had no idea they were pregnant before little Ava was born

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Her parents, Hannah Muskett and Lewis Brittain, had no idea they were pregnant before little Ava was bornPhoto credit: MEN Media

Her mother quickly rushed her to the emergency room and to Hannah’s shock, she had a baby on the way.

Little Ava was born at 34 weeks and the family fell in love immediately.

But the adorable tot was diagnosed with a very rare condition – allagiles syndrome – and died of complications just nine months later, reports Leeds Live.

Ava’s aunt Samantha Brittain told the publication: “She was with us over Christmas and then her journey began on December 29 when she was transferred to Leeds Children’s Hospital.

A stranger on Facebook diagnosed my abdominal pain after doctors failed me
Doctors say my boy, 4, has less than a year to live - I'm heartbroken

“She had numerous tests, blood transfusions, surgeries and was tube fed.

“Everyone suggested their names for the transplant and Hannah was a match.

“They both went for the transplant in May and in general the transplant worked and after the tests they saw the liver was working but the Dr. said the kidneys should become active again.

“But in this case it wasn’t like that, her kidney failed.”

Due to Ava’s premature birth, the little one was born with yellow skin and had to stay in an incubator while doctors ran tests.

It was then that she was diagnosed with Allagiles Syndrome – a genetic disorder that can affect many different parts of the body including the liver, heart, eyes, face, skeleton, blood vessels and kidneys.

Those born with the condition can have a severe combination of symptoms, and in Ava’s case, it affected her liver.

Doctors informed the family that Ava needed a transplant, but she only weighed about the same as a bag of sugar, so they had to wait to have the surgery performed.

Hannah ended up being the match, and after the surgery, doctors found that her liver function had returned.

Unfortunately, Ava then developed problems with her kidneys.

The morning after the transplant, Ava went into cardiac arrest and was gone for about four minutes.

Paramedics initially managed to revive her, but she tragically died after the third arrest.

Ava, who called Samantha the “happiest, smiling and sassiest baby,” died at 2 a.m. on June 1 at just nine months old of kidney failure and sepsis.

Her family has since set up a Gofundme page to raise money for an urn and a memorial bench.

They also want to raise awareness about the disease, which no one in the family had heard about until Ava was diagnosed.

https://www.the-sun.com/health/5632074/mum-hospital-surprise-baby-girl-died/ I was taken to the ER with “Appendicitis” and left with my surprising little girl – now we’ve lost her months later

Sarah Y. Kim

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