AN EX-SOLDIER was diagnosed with epilepsy six YEARS before doctors found it to be end-stage brain cancer with golf ball-sized tumours.
Ben Robinson was just 19 when he was hospitalized after a sudden collapse at his barracks in Chilwell, Nottinghamshire.
A scan showed tiny lesions in his brain — which doctors initially identified as deadly tumors.
But medics later changed their minds, telling Ben he had a form of epilepsy known as cortical dysplasia.
He was given medication to control the seizures.
As they became more frequent, doctors reverted to their initial diagnoses in another scan in September 2020 after finding golf ball-sized tumors growing in his brain.
The former Royal Engineer, who was medically discharged from the armed forces after five years’ service, was told his illness was terminal.
Brave Ben, who is planning his wedding to partner Kelly White, 28, says he is “at peace” following his diagnoses.
He said: “The lesions were originally described as ‘birthmarks’ in my brain and were initially the size of a pinhead.
“When I had surgery, they were huge in comparison, the size of golf balls.”
“It’s hard to understand that you have a brain tumor, let alone that you only have a limited time to live.
“I’ve learned to accept it and I’m fine with it.
“It puts things into perspective and has encouraged me to use my positivity to help others who are struggling with their own diagnosis and mental health in general.”
Last month, Ben, who has undergone grueling surgery, radiation therapy and chemotherapy, suggested Kelly, a personal assistant, as a partner.
The couple plan to travel together before starting a family once Ben finishes his treatment.
He added: “I’m lucky to have the people that I make around me. Everyone is supportive and stuck with me throughout my diagnosis.
“Kelly and I are excited about our life together and can’t wait to get married.”
Ben’s father Carl, 50, said he felt emotions ranging from “disbelief to devastation” after his son’s diagnosis.
“From all of this I want to say that we have all learned, fueled by Ben’s bravery, that something pretty beautiful can happen out of something terrible,” he said.
“Ben is an inspirational type of man.
“He taught me as his parent some things that I think I would never have learned without him.”
Ben, a part-time DJ, is raising money for Brain Tumor Research later this month.
He will take to the decks at The Kings Head in Bishops Cleeve, Cheltenham on March 26 for a night of music and fundraising as part of the charity’s Wear A Hat Day.
Up to 200 guests are encouraged to wear their favorite hat for an evening of entertainment to raise funds for the cause following Ben’s own diagnosis with the deadly disease.
https://www.the-sun.com/health/4854485/diagnosed-epilepsy-doctors-terminal-cancer/ I was diagnosed with epilepsy but 6 years later the doctors said it was an end stage brain tumor with golf ball sized tumors