A boy struggling with a nagging chronic pain condition begs his mother to amputate a leg

Dillon in hospital and at right with mother Melanie Wilford

Dillon Wilford, pictured right with mother Melanie, who described the illness as a “life sentence” (Image: SWNS)

A ‘cheeky’ schoolboy begged his mother to have his leg amputated after battling a rare and agonizing illness called ‘suicidal sickness’.

Dillon Wilford, 10, was diagnosed with complex regional pain syndrome (CRPS) in January, which causes persistent severe and debilitating pain.

The disease means those affected are sensitive to even the slightest touch – poor Dillon was in excruciating pain when a single strawberry seed or cat hair landed on his leg.

Now his mother Melanie has launched a £100,000 fundraiser to fly Dillon to a clinic in Arkansas, US, for specialist help which is unavailable in the UK.

Dillon, who hopes to one day be an astronaut, first showed symptoms “completely by accident” in November last year when he woke up with a limp – before spending the night screaming in pain.

He ended up bedridden and in a wheelchair for simple tasks like washing and going to the toilet.

The condition prevented him from going to school, playing with friends, or going out with his family, which affected his mental health.

After months of hospital visits, he was finally diagnosed with CRPS at his local unit in Bolton.

Dillon Wilford. See SWNS story SWLEpain; A 10-year-old boy asked his mother to have his leg amputated after he was diagnosed with a condition so painful it's been dubbed a'suicidal disease'. Dillon Wilford was diagnosed with complex regional pain syndrome in late January after months of trying to find a diagnosis for his excruciating pain. Complex regional pain syndrome (CRPS) is a poorly understood condition in which a person experiences persistent severe and debilitating pain. The condition is so sensitive that even the slightest touch to the affected area causes severe pain. Now his mother, Melanie Wilford, is trying to raise £100,000 to bring Dillon to America, where he will receive special treatment unavailable in the UK. Dillon first showed symptoms in November 2021 when he woke up with a limp? He spent the day at school, but by the end of the day he was in debilitating pain. After months of hospital visits and many baffled professionals, Dillion was finally diagnosed with CRPS by a doctor at his local hospital in Bolton.

Brave Dillon dreams of being an astronaut one day (Image: Melanie Wilford / SWNS)

Melanie, a single mother of four, and her daughter Maddison have been caring for Dillon while he battles the “soul-shattering” disease.

Melanie, a student nurse, said: “This is hell, absolute hell. It’s like imprisoning a child for life. In America, amputations are becoming cheaper in the US for people with CRPS.

“I’m speaking to a woman who had to have her arm removed because the pain was so severe.

“He begged me to have his leg removed. He told me he wanted to die.

“It’s awful to see my naughty boy end up like this.

“People need to know how bad it is. For a little boy to have this, he hasn’t been to school in three months.’

There is no known cure for CRPS – a condition associated with the imbalance and dysfunction of the autonomic nervous system.

But Melanie hopes the 16-week treatment will put the disease into remission.

Dillon Wilford. See SWNS story SWLEpain; A 10-year-old boy asked his mother to have his leg amputated after he was diagnosed with a condition so painful it's been dubbed a'suicidal disease'. Dillon Wilford was diagnosed with complex regional pain syndrome in late January after months of trying to find a diagnosis for his excruciating pain. Complex regional pain syndrome (CRPS) is a poorly understood condition in which a person experiences persistent severe and debilitating pain. The condition is so sensitive that even the slightest touch to the affected area causes severe pain. Now his mother, Melanie Wilford, is trying to raise £100,000 to bring Dillon to America, where he will receive special treatment unavailable in the UK. Dillon first showed symptoms in November 2021 when he woke up with a limp? He spent the day at school, but by the end of the day he was in debilitating pain. After months of hospital visits and many baffled professionals, Dillion was finally diagnosed with CRPS by a doctor at his local hospital in Bolton.

Dillon’s family are trying to raise £100,000 for treatment in the US (Image: Melanie Wilford / SWNS)

“There was no trigger for it. It was completely coincidental, he woke up one morning and was limping.

“That night he cried terribly all night. The next day I took him to A&E and they said he was fine.

“It was just luck that we saw another doctor who asked me to tell the full story and said I know what it was.

“They thought he might lose his leg because there was no blood in his leg. He was put on morphine and reacted very badly to it.

“It’s known as a suicide disease. It affects their mental (health) so much. He could no longer use his crutches since he was in the hospital and bedridden a lot. I was afraid he would wither to nothing.

“He cries every night. The first sound I hear when I wake up is my son screaming. He screams all the time.’

Dillon with his mother, Melanie Wilford. See SWNS story SWLEpain; A 10-year-old boy asked his mother to have his leg amputated after he was diagnosed with a condition so painful it's been dubbed a'suicidal disease'. Dillon Wilford was diagnosed with complex regional pain syndrome in late January after months of trying to find a diagnosis for his excruciating pain. Complex regional pain syndrome (CRPS) is a poorly understood condition in which a person experiences persistent severe and debilitating pain. The condition is so sensitive that even the slightest touch to the affected area causes severe pain. Now his mother, Melanie Wilford, is trying to raise £100,000 to bring Dillon to America, where he will receive special treatment unavailable in the UK. Dillon first showed symptoms in November 2021 when he woke up with a limp? He spent the day at school, but by the end of the day he was in debilitating pain. After months of hospital visits and many baffled professionals, Dillion was finally diagnosed with CRPS by a doctor at his local hospital in Bolton.

Mom Melanie is looking after Dillon with the help of his sister Maddison (Image: Melanie Wilford / SWNS)

The GoFundMe campaign, called Help Dillon get treatment, has so far raised £19,000 from its £100,000 goal.

The fundraiser was started by Dillon’s cousin Jessica and Maddison on behalf of Melanie.

Jessica wrote: “Dillon has had CRPS for six months now and cannot take even wind or rain caressing his leg without the most excruciating bouts of pain causing hours of high pitched screaming.

“He has CRPS in three quarters of his leg and this disease can spread to other areas of his body if left untreated or treated.

“Dillon lives in his bedroom, taking opiates and strong adult neuropathic medication 24 hours a day, while taking a drug cocktail on the side to make waking up a little more bearable.

“Dillon’s father has passed away so the 24 hour care is left to his mother and older sister who take turns at his side and looking after his other two brothers.

“Please help in any way you can, either by donating whatever you can spare or by raising awareness of this simply soul-wrecking disease.”

For more information, see the NHS website about CRPS.

For emotional support, you can call the Samaritans 24-hour helpline 116 123email jo@samaritans.org, visit a Samaritans office in person, or visit the Samaritans website.

https://metro.co.uk/2022/05/23/boy-battling-agonising-chronic-pain-illness-begs-mum-to-amputate-leg-16695365/ A boy struggling with a nagging chronic pain condition begs his mother to amputate a leg

Justin Scacco

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